C Tann-Starr's Outside Blog

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Where do I begin? VIRAL REQUEST

 

Where do I begin?

Since it has been 23 weeks since my first post on January 30, 2009 I am getting very close to another milestone in the AR community, almost at reaching 50K I am excited,
h
owever this blog I am now posting is to be a special blog that I want devoted to my daughter-in-law,

Victoria Hann Corbett

victoria and braydon

Vicky, who celebrates her 38th birthday this coming August 4th  is battling an autoimmune disease. She needs our help with an abundance of prayers. She needs a miracle, a donor to come forth and provide her with a new kidney.


She was diagnosed with Sjogren’s, an autoimmune disease, in 2004 after the birth of her first child, my first grandchild, Nolan Bryce, and is now suffering End Stage Renal Disease from complications of Sjogren’s.


Sjögren's syndrome often is undiagnosed or misdiagnosed. The symptoms of Sjögren's syndrome may overlap or "mimic" those of other diseases including lupus, rheumatoid arthritis, fibromyalgia, chronic fatigue syndrome, and multiple sclerosis. Because all symptoms are not always present at the same time and Sjögren's can involve several body systems, physicians and dentists sometimes treat each symptom individually and do not recognize that a systemic disease is present.



John Nolan BraydonNolan+Braydon

 

Vicky is the wife of my first born son, John Michael and lives in Anderson, SC. She is the mother of my two grandsons, Nolan Bryce (4 to be 5 August 6) and Braydon Pierce who turned 3 on April 20th. She has managed to enthusiastically care for them even while enduring daily fatigue and exhaustion along with her loving husband, John.  She  works full-time during her entire ordeal.  As a Certified Lactation Educator, she helps women establish a successful and loving nursing relationship with
their babies.  On top of all this, Vicky makes time to volunteer at community events such as cancer awareness days and the hospital’s Teddy Bear Clinic. 

She started a blog, Sjogrens & Me, to help others who are suffering from this disease.  Her blog is featured on
Wellsphere, a comprehensive health information website. 

Vicky is such a positive influence on the community and rarely even complains about her symptoms.
According to Victoria she tell

"What does Sjogrens feel like to have?

 

She patiently is waiting for a kidney transplant and needs all the help we can provide. With a failure of a kidney, everyday life is most difficult for her and has been for the past 5 years. By having this kidney transpant it will allow her to have a real chance to lead a normal everyday life enjoying her 2 little ones and family.

Please, if you or somebody you know can help Victoria, here are kidney donor options:

* Compatible Living Donor

* Incompatible Donor too often willing live donors do not meet the medical criteria. While it remains preferable (safer, easier, and less expensive) to receive a kidney from someone who is fully immunologically compatible, you can be an incompatible donor.

How to Become a Kidney Donor

* Paired Donor Exchange

*Deceased Donor

PLEASE, Help me use the  power of the web and social media and viral spread this request to a world wide basis of networking. May we connect in this blogosphere to everyone who might know someone who can help.

Vicky as well as needing this kidney transpant,  she and her family are in need of financial assistance to cover the extremely high costs of the  transplant.  A fundraising campaign has been established with the National Transplant Assistance Fund (NTAF)
to help offset their out-of-pocket expenses.  To date, NTAF founded in 1983, is the largest financial assistance organization in the United States for transplants and is a nonprofit organization that has been assisting the transplant communityfor over twenty-six years.

Dr. Jack Kolff and wife, Patricia, B.S.N., created the NHATF with the  vision that all people should be able to receive life-saving organ transplants without regard to their financial situations.
tax-deductible to the full extent of the law.  To support this cause:All contributions are administered by NTAF exclusively for uninsured transplant-related expenses.  Donations are please visit their webpage for Victoria Hann Corbett


May the hearts of those who can help make a difference.I thank you, my AR community family. Feel free to spread this dire message on twitter, facebook,  and on your blog.

My friends, you have been with me for 49,788K and 122 blogs

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You are the BEST OF THE BEST.

God bless you

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Comment balloon 8 commentsC Tann-Starr • July 12 2009 06:54AM

Comments

Thank you for helping to spread the word about Sjogren's Disease.  It's truly a monster without a face, and one that doctors overlook, and discount as hypochondriacal, many times.  The symptomology is so erratic and vague that patients that suffer with this monster are subjected to all manner of testing only to be told that there's nothing there.  Until it's so far advanced that the symptoms cannot be denied.

I'll pray that this young woman can find a donor very soon.  I know the frustrations of dealing with an autoimmune disease and it's not pretty. 

God bless her and her family.

Posted by Carol Smith (Casmi Photography) about 9 years ago

That's so very sad.  Thank you for helping to spread the word, I will do the same.

Posted by Chris Fisher (Your Virtual Assistant) about 9 years ago

CAROLYN: I greatily appreciate you re-blogging my blog and distributing this prevalent urgent messsage.

Thank you for all the prayers.

What Carol commenting above is so true. Vicky has told me that doctors misdiagnose that is why she is in this condition at present, If  when she went back to the hospital after her delivery of Nolan in August 2004 the Doctor should have recognized this disease but  did not.

Posted by Kathleen Ann Pacheco-Corbett, Realtor, RI-MA, CEBA, Master, e-Pro, ABR, ABRM, GR ((FIRST Exclusive Buyer's Office Providence-RI) ) about 9 years ago

Kathleen, I am very sorry to hear that. We will keep you in our prayers.

Thank you, Chris.

Thank you, Carol.

 

 

Posted by C Tann-Starr (Tann Starr & Associates, Inc.) about 9 years ago

Our prayers to you Kathleen and Vicky.  Sounds like a terrible disease.  So many times Doctors miss things like this at time of a birth.  Wonder why?   

Posted by Al & Peggy Cunningham, Brokers, Our Family Wants To Help Your Family! (RE/MAX West Realty Inc., Brokerage) about 9 years ago

Thank you Al and Peggy.

Posted by C Tann-Starr (Tann Starr & Associates, Inc.) about 9 years ago

Keeping her in our thoughts and prayers. Hopefully soon there will be a cure.

Posted by Robert L. Brown, Grand Rapids Real Estate Bellabay Realty, West Mic (www.mrbrownsellsgr.com) about 9 years ago

Thank you, Robert. Your prayers are very much needed and appreciated. :-)

Posted by C Tann-Starr (Tann Starr & Associates, Inc.) about 9 years ago

Participate